spina bifida foundation
India
spina bifida foundation
India
life becomes more beautiful !
About Us
The SBF, a not-for-profit organisation was formed by Medical Professionals and parents of Spina Bifida Children who have been involved in the care and upbringing of Spina Bifida patients in India for more than a decade. Since 1997, we – a group of doctors, parents and well wishers have been consistently working for the cause of improving the lives of Spina Bifida (SB) patients and for preventing SB.
Glimse Of Events
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Patient Resource
Spina Bifida Children who have been involved in the care and upbringing of Spina Bifida patients in India for more than a decade.
Past Events
Championships & selection for nationals trial-2019 of Ms. Khushi Ganatra Winning Laurels
The Nagpur District Paralympic Association
Dream to be Perfect Crossing oceans of hurdles is Parth Hendere a champion swimmer
Parth Hendere a champion swimmer
Upcoming Events
Maahi Rude is young girl born with Spina Bifida (Birth Defect).
She is the vice-captain of the Mumbai women’s cricket team and being recognized as the youngest cricketer in the world. She won the excellence award of the year 2023 by Nyra foundation.
about-sbf
Tabassum Wakil was born with a birth defect of the Spinal cord called Spina bifida and has a serious problem with the control of her urine and stool(incontinence). She had a bad odour because of a Urinary tract infection, so other children started avoiding her.
Her younger brother was also born with Spina bifida.
Her father is a daily wage worker who cannot afford her treatment.
She needs to undergo a super major operation (Augmentation Cystoplasty) on her Urinary tract and bowels.
The estimate expenses for this operation is about Rs. 300,000/- (all inclusive in concessional class)
This operation will make her incontinence more manageable and for her social rehabilitation.
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Education
AWARENESS is the key. For that we believe in educating people about Spina Bifida and NTDs.CMEs, Lecture series
Prevention
Saptpadi Campaign
Go Folic Campaign
Rehabilitation
Activities with SB patients
Posts & Articles
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Women’s Health Webinar
February 1, 2021 -
Multi disciplinary approach to Spina Bifida by Dr. Santosh Karmarkar
February 1, 2021 -
A Life and Global Leadership for Spina Bifida Prevention & Research
February 1, 2021
